News

The international patient voice is registered and eager to be heard on living life with Home Artificial Nutrition
PACIFHAN Directors are thrilled to announce that PACIFHAN is registered and ready to begin working for the benefit of Chronic Intestinal Failure and Home Artificial Nutrition (HAN) patients worldwide. As an international non-profit association, PACIFHAN proudly exists for the benefit of all living with HAN. And by authentically presenting the patient and carer perspective, the Directors look forward to fulfilling PACIFHAN’s mission: “To work together to promote the international sharing of information and resources to improve the quality of life of HAN patients.”
PACIFHAN is the International Alliance of Patient Organisations for Chronic Intestinal Failure and Home Artificial Nutrition, and already has members representing 10 countries around the world (Australia & New Zealand, Czech Republic, Denmark, France, Italy, Poland, Sweden, United Kingdom, United States of America), with more ready to join. In the words of PACIFHAN’s inaugural Chair, Monika Malickova, “the great value of PACIFHAN is that it brings together national leaders from around the world who either live with HAN themselves, and/or represent patients and carers living with HAN in various countries. We are the patient voice in our home countries and together we form a trusted international reference on HAN from the patient perspective.”
In recent times, PACIFHAN Directors had concentrated their efforts on attaining registration in Brussels as an international non-profit organisation. Now that has been achieved, they are exploring options and opportunities to increase awareness of the realities of living with HAN and ultimately improving the quality of life of HAN patients.
World HAN Day has already been established as 15th October each year and PACIFHAN’s Directors and members have begun planning for 2019 awareness campaign activities. The Directors also invite ideas from other HAN stakeholders in order to raise visibility and recognition of this special Day.
World HAN Day will not be PACIFHAN’s sole activity however. Monika adds, “PACIFHAN invites national HAN patient organisations and international HAN stakeholders to contact us. We envisage exciting opportunities to engage and add value to the international HAN conversation.”
For more information, contact PACIFHAN’s Chair, Monika Malickova at info@pacifhan.org