World HAN-Day 2018

PACIFHAN celebrates World Home Artificial Nutrition (HAN) Day 15th October 2018

“Let food be thy medicine and medicine be thy food” – Hippocrates

Did you know?
1. HAN is when artificial liquid nutrition is given directly into the bloodstream (Parenteral Nutrition) or directly into the intestine (Enteral Nutrition)
2. HAN is life-saving for adults and children living with medical conditions that stop them from eating or absorbing food in the normal way
3. HAN is not a cure for the underlying medical condition
4. HAN requires a team approach to care, involving patient + family/parents + medical team
5. HAN can have significant positive and/or negative impacts for the patient medically, physically, socially and emotionally.
PACIFHAN is the International Alliance of Patient Organisations for Chronic Intestinal Failure and Home Artificial Nutrition. Currently, there are nine member patient organisations covering ten countries worldwide.

Together all PACIFHAN member organisations are striving towards six common goals:
1. To be a trusted international reference on home artificial nutrition (HAN) from the patient’s perspective;
2. To encourage the exchange of peer reviewed published medical-scientific information related to HAN; 3. To assist HAN patients who wish to travel/stay abroad to seek guidance through the member association in the destination country affiliated with the international organisation;
4. To organise an annual general meeting that will be attended by a representative of each member association;
5. To increase awareness of HAN;
6. To improve the quality of life of HAN patients.

1st World Home Artificial Nutrition Day – 15th October 2017

PACIFHAN celebrates the 1st World Home Artificial Nutrition (HAN) Day -15th October 2017
The whole is greater than the sum of its parts. Aristotle
Did you know there are people living with medical conditions that stop them from eating or absorbing food in the usual way? These people (including children) depend on artificial nutrition going either directly to their blood stream through a catheter (Parenteral Nutrition PN) or to their intestine through a tube (Enteral Nutrition EN).
PACIFHAN is the International Alliance of Patient Organisations for Chronic Intestinal Failure and Home Artificial Nutrition. Currently, there are nine patient organisations covering ten countries worldwide.

Country Approximate Number of HAN Consumers National Organisation
Australia and New Zealand 270 (HPN) PNDU
Czech Republic 270 (HPN) Zivot bez streva
Denmark 450 (HPN) HPN Patient
France 2 500 (HPN), 8 000 (HEN) La Vie par un Fil
Italy 3000 (HPN), 16440 (HEN) Un filo per la vita
Poland 1 000 (HPN), 2 000 (HEN) Apetyt na Zycie
Sweden 270 (HPN), 4000 (HEN) Svenska HPN-foreningen
United Kingdom 2 000 (HPN), 30 000 (HEN) PINNT
United States 25 011 (HPN), 437 882 (HEN) Oley Foundation

Together all PACIFHAN member organisations are striving towards six common goals:
To be a trusted international reference on home artificial nutrition (HAN) from the patients perspective;
To encourage the exchange of peer reviewed published medical-scientific information related to HAN;
To assist HAN patients who wish to travel/stay abroad to seek guidance through the member association in the destination country affiliated with the international organization;
To organize an annual general meeting that will be attended by a representative of each member association;
To increase awareness of HAN;
To improve the quality of life of HAN patients.

Introduction at ESPEN

Following PACIFHANs official introduction to the world at ESPEN Congress 2015 in Lisbon, Portugal last September, we are now almost ready and very proud to launch our Home Parenteral & Home Enteral Nutrition Multilingual Dictionary (Dictionary). A list of HPN and HEN medical words have been collated and translated into 6 languages – English (UK & Australasia), English (USA), Czech, Italian, Polish, Swedish. This Dictionary will be available here soon for use by HPN and HEN travellers when communicating with medical staff, should they find themselves needing medical assistance in any countries using these languages.