PACIFHAN officially introduced itself to the ESPEN audience at ESPEN Congress in Lisbon in September 2015. PACIFHAN operated its own exhibit in the ESPEN Village were delighted with the encouraging feedback received from the many Congress attendees who visited.
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PACIFHAN celebrates the 1st World Home Artificial Nutrition (HAN) Day 15th October 2017
The whole is greater than the sum of its parts. Aristotle
Did you know there are people living with medical conditions that stop them from eating or absorbing food in the usual way? These people (including children) depend on artificial nutrition going either directly to their blood stream through a catheter (Parenteral Nutrition PN) or to their intestine through a tube (Enteral Nutrition EN).
PACIFHAN is the International Alliance of Patient Organisations for Chronic Intestinal Failure and Home Artificial Nutrition. Currently, there are nine patient organisations covering ten countries worldwide.
| Country | Approximate Number of HAN Consumers | National Organisation |
|---|---|---|
| Australia and New Zealand | 270 (HPN) | PNDU |
| Czech Republic | 270 (HPN) | Zivot bez streva |
| Denmark | 450-500 (HPN) | HPN Patient |
| France | 2 500 (HPN), 8 000 (HEN) | La Vie par un Fil |
| Italy | 3000 (HPN), 16440 (HEN) | Un filo per la vita |
| Poland | 1 000 (HPN), 2 000 (HEN) | Apetyt na Zycie |
| Sweden | 270 (HPN), 4000 (HEN) | Svenska HPN-foreningen |
| United Kingdom | 2 000 (HPN), 30 000 (HEN) | PINNT |
| United States | 25 011 (HPN), 437 882 (HEN) | Oley Foundation |
Together all PACIFHAN member organisations are striving towards six common goals:
To be a trusted international reference on home artificial nutrition (HAN) from the patients perspective;
To encourage the exchange of peer reviewed published medical-scientific information related to HAN;
To assist HAN patients who wish to travel/stay abroad to seek guidance through the member association in the destination country affiliated with the international organization;
To organize an annual general meeting that will be attended by a representative of each member association;
To increase awareness of HAN;
To improve the quality of life of HAN patients.
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Goals
1. To be a trusted international reference on Home Artificial Nutrition (HAN) from the patients perspective
2. To encourage exchange of peer reviewed published medical-scientific related to HAN
3. To assist HAN patients who wish to travel/stay abroad to seek guidance through the member association in the destination country affiliated to the international organisation
4. To organise an Annual General Meeting that will be attended by a representative of each member association
5. Increase awareness of HAN
6. Improve the quality of life of HAN patients
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PACIFHAN Members
Stowarzyszenie Apetyt na Zycie – Poland
HPN Patient – Denmark
La Vie Par Un Fil – France
The Oley Foundation – United States of America
PINNT – United Kingdom
Parenteral Nutrition Down Under (PNDU) – Australia and New Zealand
Svenska HPN-Foreningen Barn & Ungdom – Sweden
Un Filo per la Vita – Italy
Zivot bez streva – Czech Republic
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