PACIFHAN MISSION STATEMENT

To work together to promote the international sharing of information and resources to improve the quality of life of Home Artificial Nutrition patients.

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News

PACIFHAN celebrates the 1st World Home Artificial Nutrition (HAN) Day 15th October 2017
The whole is greater than the sum of its parts. Aristotle
Did you know there are people living with medical conditions that stop them from eating or absorbing food in the usual way? These people (including children) depend on artificial nutrition going either directly to their blood stream through a catheter (Parenteral Nutrition PN) or to their intestine through a tube (Enteral Nutrition EN).
PACIFHAN is the International Alliance of Patient Organisations for Chronic Intestinal Failure and Home Artificial Nutrition. Currently, there are nine patient organisations covering ten countries worldwide.

Country Approximate Number of HAN Consumers National Organisation
Australia and New Zealand 270 (HPN) PNDU
Czech Republic 270 (HPN) Zivot bez streva
Denmark 450-500 (HPN) HPN Patient
France 2 500 (HPN), 8 000 (HEN) La Vie par un Fil
Italy 3000 (HPN), 16440 (HEN) Un filo per la vita
Poland 1 000 (HPN), 2 000 (HEN) Apetyt na Zycie
Sweden 270 (HPN), 4000 (HEN) Svenska HPN-foreningen
United Kingdom 2 000 (HPN), 30 000 (HEN) PINNT
United States 25 011 (HPN), 437 882 (HEN) Oley Foundation

Together all PACIFHAN member organisations are striving towards six common goals:
To be a trusted international reference on home artificial nutrition (HAN) from the patients perspective;
To encourage the exchange of peer reviewed published medical-scientific information related to HAN;
To assist HAN patients who wish to travel/stay abroad to seek guidance through the member association in the destination country affiliated with the international organization;
To organize an annual general meeting that will be attended by a representative of each member association;
To increase awareness of HAN;
To improve the quality of life of HAN patients.

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Goals

1. To be a trusted international reference on Home Artificial Nutrition (HAN) from the patients perspective
2. To encourage exchange of peer reviewed published medical-scientific related to HAN
3. To assist HAN patients who wish to travel/stay abroad to seek guidance through the member association in the destination country affiliated to the international organisation
4. To organise an Annual General Meeting that will be attended by a representative of each member association
5. Increase awareness of HAN
6. Improve the quality of life of HAN patients

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PACIFHAN Members

Stowarzyszenie Apetyt na Zycie – Poland
HPN Patient – Denmark
La Vie Par Un Fil – France
The Oley Foundation – United States of America
PINNT – United Kingdom
Parenteral Nutrition Down Under (PNDU) – Australia and New Zealand
Svenska HPN-Foreningen Barn & Ungdom – Sweden
Un Filo per la Vita – Italy
Zivot bez streva – Czech Republic

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